The Wise One

2009-08-01T02:14:00.001-07:00

Another vid of Sage...

2009-07-19T22:51:00.001-07:00

hm didn't know there was another verse to twinkle twinkle...hehe...darn cute this little boy..

enjoy!

2009-07-18T05:49:00.000-07:00

Something new from Sage

sorry no time to edit the video. u could try twisting ur monitor the other way round :pp

2009-06-21T20:03:00.000-07:00

Apologies for the absence.

Have been back to work and as such time is a bit more scarcer...

anyway as some of you might know, the liver is slowly failing due to multiple blockages in the bile duct. If i'm not mistaken this could have stemmed from the hepatic artery not being able to provide good enough blood flow.

As such he will require another transplant in a few months time. At the moment he is on the cadaveric transplant list as a priority but his parents are also considered as donors should there be no livers available. The main reason y the parents weren't considered as the donors and instead i stepped up to donate was because that having the parents as carriers of the genetic condition, might not cause a reversal of the MSUD that he has after the transplant (we were succesful after this transplant to remove the MSUD)

So having the parents to donate, might actually lead us back to square one, right at the beginning at a condition prior to donation with Sage having MSUD. If you feel in your heart compelled by this story and would like to help out do let me know. He needs a B blood group donor.

As a donor i was in hospital for 4 days after which i was given 5 weeks of rest. Now i'm back to work and see no adverse reaction from the donation..

At the mooment Sage is his lifely self without knowing the turmoils that are going on within him. He's back to being happy and cheerful and playing about except that he appears to be a bit jaundiced (yellow skinned and slightly yellow round the eyes)

Anyway, here are some not too recent videos of him.

Thanks for reading

Regards

Kelvin Lim

-Some people make things happen

- Some people watch things happen

- While others wonder what has happened.

2009-05-08T07:27:00.000-07:00

Sage is HOME!!!

Edit : Video added

Okay so Sage is home! He was discharged today from the hospital and reached home at about 6pm in the evening with around 3 gunny sacks (haha okay maybe not gunny sacks) of toys!.

He still has a tube in his body to remove excess bile and his feeding tube as he doesn't take too kindly to eating medicine. So most of them goes through the feeding tube direct to the stomach. His walking is still a little unsteady but other than that he's as cheerful and as cheeky as ever.

Videos coming up soon, as soon as i am able to put them up on youtube. Here are some pictures to whet as appetisers first :p. Pictures are from when i last updated.

Sage the director vetting through the videos and pictures to be put up on this page. Taken on 8/5/09

Trying out the piano at home. Taken on 8/5/09

Back at home. In familiar surroundings and on familiar commodes. Taken on 8/5/09

Alain Prost? Damon Hill? Michael Schumacher? Next F1 champion. Sage Tan! either that or he's a car wrecker. Taken on 7/5/09

Michael Jordan wannabe? Look out world. Here's Sage Tan!. Taken on 5/5/09

Jolly little warrior. At his little playtable. Taken on 5/5/09

Sage playing with his brand new Mack Playset. This was taken on 5/5/09

sage in the hospital ward busy playing with his cars. At around 1 minute he starts naming them. hehe see how he plays his ah-choo car (snot rod)

2009-05-04T07:59:00.001-07:00

Written on 4th May

Okay pics and vids below taken on 2nd May. Today (4th may) he did another scan. As of now results are not out yet.

Apologies for the quality of the video. did a bit of compressing and decompressing in order to put it up. If you want i could try emailing u the original video which is about 8mb in size

Sage is really really cute here...somehow everybody go school...haha i think sage misses going to school as well. and i've no idea how hello became kewbin kokor :p but me happy nonetheless hehe

hehe i do this sometimes. leg up!.. :p

playing with his toys. As usual all these are characters from Disney Pixar Cars. The one up on the ramp is called The King while the green one he's holding in the hand is Chick Hicks

okay a bit of cars education for all our readers out there...hehe so that next time you see sage playing you can relate or can talk to him about the cars. He does have all the 4 cars below. The blue one is called The King (as seen from the pic above) the green one is called Chick Hicks and the red one which is his favourite is Lightning McQueen. The oldish looking car at the back is Doc Hudson.

The other 2 cars that u saw him playing on the video, are part of the Tuners gang. The green one is called Wingo while the Blue one is called Dj, Well in this group apparently his favourite is Boost (the purple/silver/gray coloured one) which he doesn't have

That's all for today

2009-05-02T19:06:00.001-07:00

Another video for you guys

Apologies for the poor quality of the video. Had to compress the file as after editing the video was about 1Gb in size

Also, didn't really make any cuts to the video, but do watch until the end ya.

2009-05-01T00:14:00.000-07:00

Here's a video and pics of Sage taken on 29/04/09

Doctors will be doing a scan on him on Monday 04/05/09 to check on the condition of his hepatic artery. As it is the hepatic artery doesn't seem to be doing well. This results in the bile duct not being able to function well. If need be, a surgery will be done on Tuesday 05/05/09 to see whether it can be corrected or not.

Sage is like a little kid on Christmas day, discoverying the bundle of presents below the christmas tree...hehe..he hasn't seen those presents yet and as he was walking i think something in the bag caught his eyes and he went straight for it. That bag hanging on him is the bile that's been draining out of the body cavity.

there are a few more videos coming up. i need to do some trimming and editing first before i can put them up

regards

Kelvin

2009-04-29T19:51:00.000-07:00

Two videos unedited

okay correction, the first video was taken before ops. apparently while i was already in the OT and they were waiting to wheel Sage in. Second video was taken on Wednesday 29/04/2009

2009-04-29T11:19:00.000-07:00

Okay update for 29/04/2009. It's day 24 Post op

He's got no more IV lines or drips or plugs on his hands or legs. He only has a drainage tube going near his liver to drain the excess bile that's pooling beside the liver and also his angi (feeding tube)

The hospital has initiated strict control measures (more like a lock down) due to the swine flu outbreak. Now i think everybody has to get their temperatures taken and have their data recorded when they enter the hospital (just in case the guy next to u, actually has swine flu, easier to call u back) It is thus not recommended for Sage to have visitors, both for his sake and for the sake of others as well. The playground outside Sage's room has also been shut off (to reduce the risk of spreading the infection)

Here are some pictures. Will put up some vids later too as soon as their uploaded to youtube.

(click to enlarge to full size)

Here's coming at you

Notice something different? That's the bed in the background

No more tubes or plugs in the hands. Whoopie. Plasters indicate where they used to be

Cheeky Smile again

This next section (next few pictures) shows Sage the scholar perusing over his brand new Cars book...hehe which i bought :p (that's y i'm being biased and putting up lots of the same pics) I think he likes it :D

Opening the cover. Jeng jeng jeng

Oo the cover turns into a poster!

He's identifying the various characters from the cartoon Cars.

That's Lightning McQueen! And his Gf Sally Porsche

Videos coming up, as soon as I can get them on youtube

2009-04-26T23:17:00.000-07:00

This was done about half a year ago..for fun :p

Publish Post

2009-04-26T23:16:00.000-07:00

this is a video done by a well-wisher from Down Under. Kudos and thank you

2009-04-24T22:31:00.001-07:00

Fresh off the Press

This just in. Exclusive pictures..haha

Taken today (25/04/2009)

Sage and his brother Basil. The brother has to stay outside to prevent spreading any potential infection to Sage as he's on immunosuppresant

Playing with each other through the window

His new toy set that his brother bought for him. His eyes lit up when he saw the toys

Trademark cheeky smile

Another one for the collection

If you notice, hes been wearing the same clothes over and over again. Well actually not. That's kinda the uniform at the children's ward of NUH. Kinda cute eh.

Today has been good for sage. His levels although a bit high are normalizing more and he's stop having bloody stools

2009-04-24T05:49:00.000-07:00

This just in today. Sage and his 'Cars' collection...

2009-04-24T04:28:00.000-07:00

Okay here are some pics of Sage

At the moment he's in Ward 47a bed 43. These pictures were sent by his mom via mms, and i got them in my mms inbox. Now for very weird reasons, i only receive MMS 2 days after their sent. Will try to see whether I can rectify this problem or not. Caption and dates of pictures are from his mom (those in brackets are from me). Will update on any other pictures whenever i receive them (hopefully not 2 days late)

19/04/2009 - Sitting up playing with cars (i think he's got almost 100. I've got another 10 more waiting for him)

18/04/2009 - Relaxing in his new bed and in his new room (previously he was in Paeds ICU)

16/04/2009 - Finally made him smile. He said Subaru. (hinting on his next bday present, Impreza!. Strangely enough he looks like me when i was 8..will try to dig out a picture)

14/04/09 - Just had his bath. Had to put in main arterial line

13/04/2009 - His first smile, watching Hi-5

2006-11-16T01:10:00.000-08:00

Here's some more pictures of the little fella.. On the whole he's doing quite well i believe...occasionally still needing his feeding tube but when he;'s been good, the feeding tube can be removed.

Got affected by haze...cause lung problems for him so during that time he was admitted back to the hospital for observation for several days..

other than that, he's pretty active most of the time..except when he's high...can't crawl yet but he roams around the house in his walker....loves to watch 'wheels on the bus' he's eating more solids as well..not completely dependant on milk.

And the good news is, i just realised that he'll be reaching one year of age soon ..well maybe not so soon but it's only about a month plus away. which means the prognosis of the future is good....1 yr is really a milestone in this case..

here's some pic...haha..i was lazy to upload..but these were taken over several months..maybe can see the growth in him?

i will put up the pic in chronological order

2006-01-17T08:24:00.000-08:00

Sage's respiratory tube was finally removed at 3pm today....

According to Aunty Cindy...his expressions now looks like yoda...but his voice sounds like darth vader :p

here are the picsc

2006-01-17T01:36:00.000-08:00

Sage is doing quite well today, supposed to have his respiratory tube removed at 1.30pm, at the moment not sure of the status of the tubes. Pictures were taken circa 1pm, as you can see, he's not as bloated as previously, and his rashes have also reduced.

When i was there he was quite responsive, crying when the nurses were taking blood from him...you can see him straining and moving due to the pain and his mouth were wide open but it was a sort of silent scream as he's unable to make any noise yet. He has one eye partly open , not very big but can see that he's alert, when he yawns you can see both eyes.

Blood sasmple was sent to KL yesterday via the Tan Family Courier express...according to aunty cindy, leucine level from the test was 1031 which is still high considering the normal values of 100....his next blood sample will be collected today, frozen, sent to the courier company tomorrow and expected to arrive in KL on thursday via the not so fast courier company. Hope to hear good news then.

Nurse said cannot take picture :p but the nurses attending sage and the doctor din't really care... will see whether i can sneak in tonight to take picture of him without that ugly huge green tube in his mouth.

2006-01-15T07:02:00.000-08:00

middle of the night, the doctor ordered a blood tranfusion as Sage appeared not to be doing too well ...however in the morning, when they tried to do the tranfusion, they had difficulty as if i'm not mistaken the veins were giving problem...finally started tranfusion at 9.10am

sage appears to be quite puffed up today.....a result of lack of isoleucine and valine in the system, so the dr decides to pump up those quantities...constant vomitting has resulted in there being a feeding tube inserted directly into the intestines, bypassing the stomach...his body still has a high amount of water retention causing aunty cindy to remark that he looks like that scottish guy from austin powers 2 :p haha but no..he's never like that guy..he's too cute!!

gain bout 300 g over the past day but possibly that most of it is due to water retention. at this rate his weight should be about 3.6-4 kg if i'm not mistaken (dont have exact figure)

on the plus side, he's being more responsive to touches and he's having more unassisted breath although they haven't taken him off the respirator....he's yet to open his eyes since thursday morning...

he's also got a new buddy...Leo the leopard...haha most of the time Leo is put to 'work' supporting the weight of his master's hands or legs...

things look to be on the upswing...